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MPS VI is a rare, progressive disease caused by an enzyme deficiency. Our son Isaac was diagnosed with this disease in October of 2005, which prompted us to form our charity.
Our mission is to raise funds to support research into innovative treatments and potential cures for MPS VI and other MPS diseases, to increase public awareness about MPS diseases, and to provide support and information to other families dealing with this devastating diagnosis.
Silent Auction
Help our Gala be a success by donating a silent auction item to our event. If you would like to help, please email Ellen!
Our first annual Gala For A Cure will take place in Cobourg, Ontario. The night will feature wine tasting, live music, dinner, and a silent auction. In addition, Roy Bonisteel will be our guest speaker! Please contact us for tickets.
Isaac and Gabriel with Toronto Blue Jays ace Roy Halladay.
In October of 2005, our first born son, Isaac, was diagnosed with a rare and progressive disease called MPS VI. At the age of only 18 months, our seemingly healthy, active and bright little boy was beginning to show the first symptoms of this devastating disease...
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06 26 10
Isaac and Gabriel travelled to Philadelphia to see and connect with their friend and Phillies ace, Roy Halladay. Read our blog entry about their trip, here.
07 16 10
Gala tickets are now available! Please contact us to reserve yours today. Limited number available.
Information can be found HERE.
08 12 10
John Mayer has donated a signed guitar for our silent auction at the Gala, co-signed by Isaac.
08 12 10
New blog update entitled Celebrity, Media, and The Truth just published. Truth be told, I didn’t want to blog on John again, but couldn’t help myself. Read “Celebrity, Media, and The Truth” on our blog.