Love, Laughter, and Hope

The Isaac Foundation’s mission is to fund innovative research projects that aim to find a cure for MPS, a rare, debilitating, and devastating disease.

We provide support for families of individuals suffering from MPS and advocate on their behalf to ensure government funding for expensive, life-sustaining treatments are covered by the health care system.

Since 2007, we have provided over $1 million to research grants for projects around the world that seek to cure and improve current treatments for MPS diseases. We will continue to work tirelessly to raise awareness of this disease and provide support for families dealing with this devastating diagnosis until a cure is found.

On this rare disease day, it's important to acknowledge the struggles, the triumphs, the up-and-downs, and the precious moments each of our families experience every day. Each moment is special. Every second together matters. Every experience shapes the unique perspective we have on what's truly important in this world. I think this song by captures that world so beautifully.

Thank you to all the families featured in this special piece. Personally, it's been the honour of a lifetime to have played a small role in your lives, to get to know you, to feel like you're family. I can't thank you enough for including me in your journeys and allowing me to be part of it all - the celebrations and heartache alike. I promise you that we will continue our search for cures, continue the research we know will transform lives, and continue to be by your side through it all.

Dr. Isaac Bogoch joined The Isaac Foundation at our 12th Annual Rare Disease Symposium to discuss COVID-19, the Omicron variant, rapid testing, and the impact the pandemic has had on our rare disease patients and families. He also provided some tips to help keep our kids and families safe over the holidays.

Please take some time to watch, share, and send us any questions you might have.

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Together, We CAN Make a Difference!

The Isaac Foundation’s mission is to fund innovative research projects that aim to find a cure for MPS, a rare, debilitating, and devastating disease.

To do this, we host many fundraising events throughout the year and accept donations online and through the mail. We are very proud of the fact that 99% of all donations go directly toward our charitable activities and mission to support research aiming to find a cure. All donations receive a charitable tax receipt, delivered through email.

Thank you for your tireless support!